Best of luck to Tim Boyd on his Rare Action Road Tour!
Tim Boyd, NORD's Associate Director of State Policy, is finishing up a cross country journey this week. He has traversed over 4,000 miles, meeting with NORD members and Rare Action Network™ advocates throughout the United States. Don't forget to join the road trip on Twitter with #RareAction To learn more about Tim's trip, check out the link: http://rarediseases.org/rare-action-road-tour/ #rareaction #rareactionroadtour #rareactionnetwork #nord #raredisease
NORD's Rare Diseases and Orphan Products Breakthrough Summit
Patagonia will be attending this year's Rare Diseases and Orphan Products Breakthrough Summit from October 21 - 22 in Alexandria, VA. Please let us know if you would like to connect at the event. #nord #rarediseases #orphanproducts #breakthroughsummit #patagonia #pharmaceuticals #dermatology #ichthyosis
