May is Ichthyosis Awareness Month!
We are so excited to support and promote Ichthyosis Awareness Month (IAM)! For more information and a list of all the amazing ways you can get involved, please review the FIRST website at http://www.firstskinfoundation.org/ichthyosis-awareness-month #IchthyosisAwarenessMonth #ichthyosis #raredisease #orphandisease #patagonia
FRAME Ichthyosis: A collaboration between the FIRST community and the Positive Exposure organization
FIRST, in collaboration with Positive Exposure, released a great video this week that highlights congenital ichthyosis from the patient perspective. It is used as an educational tool in medical communities, worldwide, to not only raise awareness, but to provide a better understanding of the needs of individuals born with ichthyosis. I encourage you to take a few moments to watch here. http://vimeo.com/131776259 #ichthyosis #first #raredisease #dermatology #medical #education
Worldwide orphan drug sales forecast to total $178bn in 2020
EvaluatePharma has just released their Orphan Drug Report 2015. This free report contains tons of great information on the current state of the market. A few highlights below: - Median cost per patient differential is 13.8 times higher for orphan drugs compared to non-orphan - Phase III orphan drug development costs half that of non-orphan but Phase III drug development - Worldwide orphan drug sales forecast to total $178bn (CAGR 2015 to 2020: +11.7%); nearly double the ove
Patagonia team attending the Bourne Partners Global Healthcare Executive Summit next week!
We're excited to attend the fifth annual Bourne Partners Global Healthcare Executive Summit in Charlotte, North Carolina on September 2nd-3rd. This event features top executives participating in a variety of panel discussions regarding healthcare and pharmaceutical issues and trends, as well as opportunities for attendees to interact one-on-one with industry leaders and innovators. If you will be attending and woudl like to schedule a meeting, please send an email to info@pa
Who is the Foundation for Ichthyosis and Related Skin Types (FIRST)?
We talk about the FIRST organization quite a bit here at Patagonia. They are an incredible resource for patients and supporters. To learn more about their organization, check out their newly released video: https://www.youtube.com/watch?v=8laUeY_i9XM #first #ichthyosis #raredisease #skin #video #nonprofit #foundation #patagonia #patient
May is Ichthyosis Awareness Month!
Patagonia is proud to support Ichthyosis Awareness Month! Ichthyosis is a rare skin disease that is characterized by dry, thickened, scaling skin. With almost 30 genetic subtypes, this condition impacts the lives of individuals across the globe. During this month, we encourage you to take the time to learn more about the disease. FIRST, the "Foundation for Ichthyosis and Related Skin Types", is an active patient advocacy group dedicated to educating, inspiring, and connecti
Toxicologist Gary Wolfe, PhD, DABT joins Patagonia's Advisory Board
We are pleased to welcome Dr. Gary Wolfe to our Advisory Board. Dr. Wolfe is a board-certified toxicologist with over 35 years of experience in the conduct of nonclinical toxicology studies, director of nonclinical laboratories, and preparation of regulatory submissions and documents. He received his M.S. and Ph.D. in pharmacology and toxicology from Purdue University in 1976 and 1978, respectively. He is a member of the Society of Toxicology, American College of Toxicolog
UBS Global Healthcare Conference
Patagonia Pharmaceuticals is excited to attend the 2015 UBS Global Healthcare Conference in New York, May 18-20. This conference provides a forum to discuss the latest developments across the entire healthcare sector. Please contact info@patagoniarx.com if you would like to connect! #patagonia #ubs #healthcare #conference #global #newyork #orphan #disease #medicine #dermatology
Meet us at DCAT
Patagonia Pharmaceuticals will be in NYC from March 16 - 17 for DCAT . Please let us know if you'd like to schedule a meeting. #dcat #pharmaceuticals #orphandrugs #dermatology #skin #ichthyosis #nyc #patagonia #rarediseases #newyork
Biotech Primer's Drug Development Immersion
Patagonia will attend Biotech Primer's Drug Development Immersion course in West Windsor, NJ from February 11-12. Please reach out to us if you would like to connect. #drugdevelopment #biotech #fda #orphandrugs #patagonia
