NYSKIN: A Pop Up Event
NYSKIN is a unique pop up event that will map New York City through the faces of its inhabitants and visitors. Over a two week period, a...
Regulatory Flexibility and Lessons Learned in Orphan Drug Development
John Jenkins, MD, Director, Office of New Drugs at FDA spoke at the NORD Summit last week about the regulatory flexibility granted to...
New York Times Publishes Insightful Op-Ed on Living with Ichthyosis
Disability is a weekly series of essays, art and opinion by and about people living with disabilities. In this week's feature, Anne...
Patagonia Enters into Global Licensing Agreement with Almirall for PAT-001
Patagonia is excited to announce that we have entered into a global licensing agreement with Almirall for our lead product, PAT-001. ...
The Rise in Orphan Drug Designations: Meeting the Growing Demand
The official blog of the FDA recently published an article on their efforts to maintain efficiency despite a record number of Orphan Drug...
Health Spending to Grow by Nearly 6% a Year Through 2025
A recently published article by MedPage Today reviews the expected growth in healthcare spending. Centers for Medicare & Medicaid...
May is Ichthyosis Awareness Month!
During this month, we encourage our families and friends to raise awareness about ichthyosis by hosting grassroots events in their local...
IMS Health Study: U.S. Drug Spending Growth Reaches 8.5 Percent in 2015
According to an IMS Health press release, total spending on medicines in the U.S. reached $310 billion in 2015 on an estimated net price...
Tune in to TLC's 'Two in a Million' on April 6th!
TLC recently announced the launch of a new show focused on putting together pairs of individuals who share the same rare disease. One...
Support Rare Disease Day 2016!
Did you know there are over 7,000 different types of rare diseases, with more being discovered each day? The Rare Disease Day 2016 theme...
