July 6, 2018

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Recent Posts

FDA Comments on Recently Released Rare Disease Guidance for Industry

September 16, 2015

Jonathan Goldsmith, M.D., F.A.C.P., FDA’s Associate Director, Rare Diseases Program, Center for Drug Evaluation and Research, comments on the recently...

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Featured Posts

Best of luck to Tim Boyd on his Rare Action Road Tour!

August 10, 2015

Tim Boyd, NORD's Associate Director of State Policy, is finishing up a cross country journey this week.  He has traversed over 4,000 miles, meeting with NORD members and Rare Action Network™ advocates throughout the United States.  


Don't forget to join the road trip on Twitter with #RareAction


To learn more about Tim's trip, check out the link: http://rarediseases.org/rare-action-road-tour/

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