FRAME Ichthyosis: A collaboration between the FIRST community and the Positive Exposure organization

FIRST, in collaboration with Positive Exposure, released a great video this week that highlights congenital ichthyosis from the patient perspective. It is used as an educational tool in medical communities, worldwide, to not only raise awareness, but to provide a better understanding of the needs of individuals born with ichthyosis.

I encourage you to take a few moments to watch here.

http://vimeo.com/131776259

#ichthyosis #first #raredisease #dermatology #medical #educationaltool #patagonia #skin #positiveexposure