July 6, 2018

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Recent Posts

FDA Comments on Recently Released Rare Disease Guidance for Industry

September 16, 2015

Jonathan Goldsmith, M.D., F.A.C.P., FDA’s Associate Director, Rare Diseases Program, Center for Drug Evaluation and Research, comments on the recently...

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Featured Posts

Support Rare Disease Day 2016!

February 29, 2016

Did you know there are over 7,000 different types of rare diseases, with more being discovered each day?  The Rare Disease Day 2016 theme ‘Patient Voice’ recognizes the crucial role that patients play in voicing their needs and in instigating change that improves their lives and the lives of their families and carers.

 

For more information and to learn ways that you can support this campaign, please visit the following link:

 

http://www.rarediseaseday.org/page/news/the-rare-disease-day-2016-theme-and-slogan-patient-voice-join-us-in-making-the-voice-of-rare-diseases-heard

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