July 6, 2018

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Recent Posts

FDA Comments on Recently Released Rare Disease Guidance for Industry

September 16, 2015

Jonathan Goldsmith, M.D., F.A.C.P., FDA’s Associate Director, Rare Diseases Program, Center for Drug Evaluation and Research, comments on the recently...

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Tune in to TLC's 'Two in a Million' on April 6th!

March 23, 2016

TLC recently announced the launch of a new show focused on putting together pairs of individuals who share the same rare disease.  One episode will even feature Bobbi of Arizona and Kenny of New Jersey, both suffering from lamellar ichthyosis.  We're excited to start watching in a couple weeks!

 

To learn more, click on the link below:

http://www.inquisitr.com/2917182/new-show-two-in-a-million-matches-people-with-rare-diseases/

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