July 6, 2018

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Recent Posts

FDA Comments on Recently Released Rare Disease Guidance for Industry

September 16, 2015

Jonathan Goldsmith, M.D., F.A.C.P., FDA’s Associate Director, Rare Diseases Program, Center for Drug Evaluation and Research, comments on the recently...

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Featured Posts

New York Times Publishes Insightful Op-Ed on Living with Ichthyosis

August 25, 2016

Disability is a weekly series of essays, art and opinion by and about people living with disabilities.  In this week's feature, Anne Kaier describes what it is like to live with lamellar ichthyosis.  


To read the full piece, please follow the link below: http://www.nytimes.com/2016/08/24/opinion/finding-refuge-with-the-skin-im-in.html?_r=0

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