July 6, 2018

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Recent Posts

FDA Comments on Recently Released Rare Disease Guidance for Industry

September 16, 2015

Jonathan Goldsmith, M.D., F.A.C.P., FDA’s Associate Director, Rare Diseases Program, Center for Drug Evaluation and Research, comments on the recently...

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Featured Posts

Thank you FIRST!

July 6, 2018

Our team just returned from Nashville, TN, where FIRST hosted their biennial, national conference.  It was a fantastic opportunity to engage with a variety of stakeholders within the ichthyosis community, including KOLs, patients, and advocates.  


Our President, Zach Rome, sat on a panel alongside Dr. Amy Paller, Dr. Keith Choate, and other industry professionals to discuss collaboration between Pharma and Research while also sharing our unique perspective of the drug development process.  Additionally, our team had the chance to meet hundreds of patients and their families to gain valuable, first hand insight on the difficulties and struggles living with this condition.   It is clear that stakeholders are actively looking for new treatment options, and we are very excited to be working on a product that will have a meaningful impact in the lives of these patients.  


For more information on FIRST and to receive additional updates on the conference, please click on the following link: http://www.firstskinfoundation.org/

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